Financial Toxicity – The Cost of Myeloma Treatments

Financial Toxicity in Cancer They call it financial toxicity. Many multiple myeloma treatments cause unwelcome effects in myeloma patients. One of the most common side effects of myeloma treatments is peripheral neuropathy in which the patient develops pain or numbness typically in the hands or feet. Other treatments cause nausea, vomiting, and so on. The … Read more

New Myeloma Drug Tecvayli Approved

I wouldn’t with multiple myeloma on anyone, and goodness knows those first two years were not fun. Sitting here in MRD- land, however, I can take joy in the excitement of the FDA approving a new multiple myeloma drug. What Is the Latest Multiple Myeloma Drug? All right stick with me here folks. The science … Read more

What Is The Difference Between Relapsed and Refractory Myeloma

As with most cancers, and really anything medical, there are a lot of multiple myeloma terms and vocabulary out there that you might not know from the beginning. Getting to know the definition of multiple myeloma terms will help with understanding information about the disease. What Is Relapsed Multiple Myeloma? It is often said that … Read more

Goodbye Oncologist

My oncologist left. I had a different oncologist in the beginning. A search on my insurance’s in-network doctors sorted by distance from my house gave me my first oncologist. He was fine. There was nothing wrong with him. But my autologous stem cell transplant introduced me to another oncologist — and his team, and his … Read more

Beware Short-Term Health Insurance Plans

I often say that we aren’t in the name, but they are our people anyway, about Leukemia & Lymphoma Society. The LLS advocates and helps not only those with the title diseases of leukemia and lymphoma, but all the blood cancers, including multiple myeloma and Hodgkin’s disease. So, when they talk, those of us with … Read more

What Is Car T for Multiple Myeloma

So, you have multiple myeloma, or you know someone who does (or how else did you end up here?). Chances are you have heard of CAR T (pronounced car — like a Ford — and the letter T — like Sesame Street). What is CAR T exactly and how does CART fit into multiple myeloma … Read more

Health Insurance and Cancer

I’ve wanted to write about how health insurance works when you have cancer for a while now, but haven’t really gotten around to it. But, here we go. How to deal with health insurance when you have cancer. Cancer Claims with Health Insurance First off, you really, really need health insurance if you have cancer. … Read more

Should Myeloma Patients Get a Third Covid Shot?

Update: I got my booster (third covid shot) last fall. I didn’t have any side effects from it, although my wife seemed pretty beat up for a day or two after hers. After my January meeting with my oncologist, I’ve learned that as a multiple myeloma patient, I’m considered immunocompromised, and they now recommend another … Read more