It’s not all sunshine and rainbows. It’s been two years since I was diagnosed with multiple myeloma. It has tried to kill me twice. The second time caused my oncologist to parse his words very carefully in front of me, “That was… that was a save. Mucor is usually fatal.” I should feel lucky. – … Read more
When I got blasted with melphalan last year as part of my autologous stem cell transplant (SCT), it chewed up the nerves in my feet leaving me with some pretty substantial neuropathy. What Is Neuropathy? You can find the official medical definition of peripheral neuropathy here. For, those of us with multiple myeloma, neuropathy is … Read more
This is one of those things that I’m going to put into a nice graphic when I have the time. For now, hopefully this table proves useful as a thesaurus of myeloma drugs, and their brand names vs generic drug names. Myelo – A prefix meaning marrow or of the spine Myeloma – a tumor … Read more
Myeloma chemotherapy generally starts out pretty well for a lot of myeloma patients, depending on where they were in the course of the disease when they got diagnosed. For weeks, friends and family remarked on how well I looked. It seemed like nothing had changed. It turns out that the various myeloma chemotherapy drugs all … Read more